Wednesday, September 18, 2013

George has been approved

Hi, Thanks for your concern about George and me.  If you are reading this, you already know that George has been diagnosed with a rare blood disease, Amyloidosis.  If you look it up, he has the primary or AL type.

Basically, in layman's terms, his stem cells are making Amyloid, which gets into his blood and can destroy the organs and systems.  It's a hard disease to diagnosis, because it is insidious until a major organ is affected.

In George's case, it was his kidneys.  The good news is, other organs seem ok and there is a world renowned specialist at Tufts Medical Center.  We are under his care.

The plan now is that George will take injections that will help produce many stem cells, starting Sept. 27.  Then he will go through a process to harvest a million cells from his blood.  This is a two or three day process on an out patient basis.

He is scheduled to be hospitalized at Tufts Medical Center on Oct. 11, 2013 for chemo and a stem cell infusion of his own cells.  After that, 100 days of laying low to avoid infection.

Right now, George is in the best mood you could expect from someone in his situation.  He is not in pain, but always fatigued.  The issue with his kidneys causes swelling of his legs, feet, arms and face. 

You can e mail him at jgparsons921@gmail.com.  He will be learning to use e mail and Skype!
Thanks for your concern and prayers and wishes.j

11 comments:

  1. Glad to hear treatments will be started soon! Hugs and kisses!

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  2. So glad that you have been "approved". We will support you on your road to recovery.

    Love from Ginny

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  3. Well, George, I have always "approved" of you. Seriously, though, I am hoping for the best possible recovery for you. You have so many people pulling for you. I'll keep you in my prayers.
    Love, Connie

    PS. Write us back. We're waiting.

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  4. Well, George, I have always "approved" of you. Seriously, though, I am hoping for the best possible recovery for you. You have so many people pulling for you. I'll keep you in my prayers.
    Love, Connie

    PS. Write us back. We're waiting.

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  5. Hi George,
    There is a place where all my positive energy will be going, you! Maybe now you will get to read "Instant", the book about Polaroid.
    XXXOOO
    Roseanne

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  6. Love the photo but I think that is my sweatshirt. Love the prescription bottle in the background.

    Aunt Ginny

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  7. Now, that is one handsome man! Hugh Jackman stand aside....
    Sending lots of love.
    Nancy

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  8. George,
    I'm thinking about you. We'll be eating lobsters again before you know it! Lobsters, smothered in butter with a cold glass (aka bottle) of wine:)
    Roseanne

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  9. Hi Uncle George,

    We have been thinking about you every day since hearing the news and have you in our thoughts and prayers. If you or Joanne need anything, let me know - I'm not far away.. best wishes for a full and speedy recovery.. i'll be following your progress regularly

    Love, Karen, Andy, and Ryan

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  10. We are thinking of you both and send you our love!!!
    XO,
    Crissy (Sissy and Missy too )

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  11. George,
    You even look good when you're sick! Hang in there.
    Roseanne

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